So heres our plan...
1. We've been in constant contact with our pediatrician and I think some things may be food related. So we've eliminated milk, giving her soy, and started a very bland diet. We have an appt with them next week. Maybe grasping at straws, but gotta start somewhere.
2. We begged our international pediatrician to see us and have an appt next Tues.....thank God!!! I'm banking on this appt to give me some answers to some very important questions on how to handle all these difficulties...the tantrums, the lack of bonding with anyone else, the freaking out, all of it.
3. I called my work and will schedule an appt for a full eval with EI in the coming weeks. I get to hand pick the team (one of the perks to knowing all the players) so I'm thinking long and hard who I want to see this show Haha
4. We may finally have an appt with our social worker next week. Not sure....we're still really upset and disappointed on how they've handled us.
5. I started a journal where I'm tracking foods, tantrums, etc to see any patterns. I gotta feel like I'm doing something.
So that's the plan....and in the meantime the day to day plan is basically to make it through each and every minute ALIVE....nice plan right???? But thats where we're at.
And I pray every night as I lay awake that tomorrow will be a sunny day....because being outside is honestly the only way I'm making it....
Pool and water table fun
Painting on the driveway with outdoor paints
Or painting on your face and clothes is fun too!!!!
Please keep those prayers coming. This is the hardest thing I have ever endured in my entire life. Joe and I are usually such a team and this is brutal having to do it ALL on my own. My hope is that the advice we get is to just let her scream with him and she'll need to learn...because it doesn't appear like taking it slow is working.....and we know many say it will just take time...but really its been over 3 weeks now and Joe hasn't even held his daughter....now that's a problem!!!!
Pool and water table fun
Painting on the driveway with outdoor paints
Or painting on your face and clothes is fun too!!!!
Please keep those prayers coming. This is the hardest thing I have ever endured in my entire life. Joe and I are usually such a team and this is brutal having to do it ALL on my own. My hope is that the advice we get is to just let her scream with him and she'll need to learn...because it doesn't appear like taking it slow is working.....and we know many say it will just take time...but really its been over 3 weeks now and Joe hasn't even held his daughter....now that's a problem!!!!
6 comments:
Shannon & Joe,
The plan if what you need right now. It really could be a food problem that causing her to wake up at night with stomach pains. It's awful seeing her having a tantrum and seeing that the littlest thing sets her off. I know that you're exhausted and we pray every night that things will get better.
Just keep talking at the Boston appointment and tell them you need some answers, FAST!
We'll support you in any way we can.
Love, Mom & Dad M
I pray that things get better. I know they will, sooner than later. Love Mom and Dad
Pray things will get better soon!
I'm sorry this is so hard, but so glad you have a plan. I think it's a great plan and your doing everything you can to make it better. I hope you get some answers on how to make it better, and I pray it gets better soon!!:)
Good plan, I have been thinking about you and praying for you. Cannot wait to hear thos epositive updates!
You all have been on our minds and hoping that things will soon get better. Shannon, you and Joe are a strong couple and will make it through this. Hoping you get some answers soon and if not, at least a little bit of relief. We love you all, love and hugs, Amy, Chris, Nick and Maria
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